Wednesday, May 21, 2008

Developmental Delays?

Developmental Delays? I had no idea what exactly this meant. When we brought Faith home my husband and I new that she was a bit delayed, we weren't in store for how delayed she really was. Faith has been home a little over a month now and we will be celebrating her 1st birthday on Friday. Unfortunately, there will be no shoving cake in her mouth or opening presents for the first time, because she doesn't know how. She can't sit on her own, roll over properly, won't grab anything, not even your finger, she doesn't crawl or walk, and shes just learning how to eat baby food. It pains me to think that she has never made it to her milestones, not even for Guatemala's standards.

When we arrived home, I had contacted our early intervention program and started the process of getting Faith the care she needs to get were she needs to be. Today was her evaluation with the occupational and physical therapist. It was obvious to the physical therapist that Faith had spent a majority of her time on her back due to the way her body has developed. She has extremely low muscle tone. He said she was at about a 1 to 2 month old level physically. The occupational therapist stated that she has Sensory Processing Disorder (SPD). Please see link to read about the disorder. http://www.spdfoundation.net/aboutspd.html. She stated that she was at about a 3 to 5 month old level. Both therapist stated that she is extremely delayed. The therapist were amazing and Faith will start therapy next Friday.

My daughter is the most beautiful, happy, fascinating soul I've ever met. Although her abilities are limited her eagerness to learn is plentiful. My biggest joy will be the day she can sit on her own. I love all my children more than any words could describe. The lord has entrusted me to care for Faith and I am ever so grateful. People always tell me that she is so lucky to be with us and that we saved her life, but I am truly the lucky.

I ask that you keep her in your prayers.

4 comments:

Kerri said...

I'm so glad you have EI services coming. I hope they will be a big help in getting Faith caught up.
Kerri and Ruby

Donna said...

Hi--I will keep you all in my prayers. Therapy does amazing things, my significant other is an occupatinal therapist. I hear similar circumstances often. I'm sure you will see big changes in Faith. You are all lucky to have each other!

love,
Donna

Heidi said...

You are always in my thoughts and I pray that once her therapy begins, she will be able to catch up. I hadn't thought it was quite that bad. It must be frustrating but she is lucky to have you, and absolutely, you are lucky too.

Steph said...

You are an amazing mom and Faith is most definitely a blessing. Early intervention is wonderful and I am so happy to see that Faith is starting therapy soon. You are her best advocate in making sure she is getting the services she needs. I can't wait to see how she is progressing.