Saturday, January 10, 2009

Faith's first week of intensive therapy is complete and she did an awesome job.

As her mother, paying a million dollars for such an intense therapy, I have high HOPES. I'm afraid. I'm afraid that my hopes are TOOOOOO high. You see, when you have a special needs child all you want as a parent is for him/her to be normal. Unfortunately, NORMAL as we see it is not an option. Special needs children are very normal,"THEIR" normal and I'm learning to come to accept and love Faiths normal.

I love my daughter with all my heart, her quirkiness and all. But, I would love for her to be mobile on her own. I want her to sit up on her own, crawl and walk, on her own, and I want it now. My sister told me that her process of growth and development will take patience. I proceeded to tell her that I don't want patience, I want a miraculous recovery. She said "Patience now, miraculous recovery later". And you now what, she couldn't be more right. So I'll be praying for patience.

Some of Faiths weekly accomplishments. Prior to this last week Faith hated when you touched her head. You couldn't comb it, rub it or put a brush in her hair without her freaking out. Now I can do all that and she doesn't make a peep. It is so awesome that I can touch my daughter in a lovingly, motherly way. She is also beginning to bear some weight on her legs and is learning how to get into a sitting position on her home.

One week down and two to go.

I need to give a shout out to Loulou creations for the wonderful clothes she has made for Faith. We love them. Check out Faith in her outfits.

Thank you to all my friends, family and blogger buddies for you continuous prayers and support.


Steph said...

Oh, this brought tears to my eyes. I can't imagine how difficult this must be. I suppose letting go of those expectations is the hardest thing to do? But, it also opens the heart to amazing things. And, what a wonderful connection and support you have with your sister.

The outfits are too stinkin' adorable!

I will be thinking of you!

Leslie said...

i just got abby some cute lou lou Christmas pants soo cute!


Vanessa said...

Congrats on the progress!!! May many more hurdles be crossed this next week!!

Kerri said...

I know these are tough times. Sounds like you're making great progress in accepting Faith and her own normal. Hugs as you continue this journey!

Sig said...

Faith is beautiful. I will be praying for you guys, she is a real fighter :)